Creutzfeldt-Jakob Disease, CJD Support Group for short statured children of the 1970's and 1980's. Recommendations for Unapproved/Unregistered recipiants

The Inquiry also found that HPAC had seriously breached both Federal and State laws, it breached its own guidelines and engaged in human experimentation. The report was damning. Commentators described the program as the worst case of medical negligence in Australia's history. It was not in the Inquiry's terms of reference to draw conclusions regarding issues of professional or criminal misconduct and unlawful negligence

We are a grass roots organization of individuals formed in May 1997 to support families during and after a CJD crisis. We also discuss various issues surrounding CJD and other related illnesses. As of October 1999, we have over 400 members.

Creutzfeldt-Jakob Disease (CJD) is a rare disease of the central nervous system, which results in death after a relatively rapid course of muscle weakness and dementia. There is no definitive diagnostic test and no known cure

The Allars Inquiry found that there were a group of recipients of hormones including those who received hormones who were not approved to do so by HPAC or its Subcommittees. These include individuals who received hormones before the official commencement of the AHPHP, those who received hormone produced by other groups (VPG and Dr Brown), those who only received a simulation test, those who were treated for cervical mucus problems, those treated with research allocation of hormones for example, the Egg Project and IVF Program and those who were treated with left over' hormones by a treating practitioner.

CJD Voice's Chat Room from the U.S.A. Welcome to our Live Chat Room! Chat Schedule 7-8pm Wed (Australian EST) 12pm-1pm Friday (Australian EST) 1pm to 3pm Sunday (Australian EST) Stop by and visit! After the applet loads, click the button below to enter the Bravenet Chat Room Server. When the Chat window appears, enter a nickname for yourself where it says 'Your Name' and a short 'Profile' about yourself. Then click the button to 'CHAT!'.

Many recipients believe however, that the Allars Inquiry did not adequately address the issue of accountability because the terms of reference did not go to the question of liability. ...all of the agencies that were connected with the Australian human pituitary hormone program are at fault. The revelations of the Allars inquiry are mind-boggling to say the least. The irony of all of this is that no one will ever be made accountable for their improper actions, actions that have left a number of people dead, others at risk and families devastated by a dreadful disease

The legal framework regulating sterilisation of children in Australia was set out by the High Court in Marion's Case in 1992. It sought to ensure heightened accountability in decision making in an area where children are at significant risk of grave abuse of their fundamental human right to bodily integrity

The good news is that the availability of highly sensitive techniques for the detection of pathological prions will make it possible to make a firm diagnosis of Creutzfeldt-Jakob disease without resorting to brain biopsy

Dutch researchers report on the case of a man who developed CJD 38 years after receiving human derived growth hormone. A 47 year old man was given only a low dose as part of a diagnostic procedure, rather than being given full treatment, which may explain why the incubation period lasted so long -- the longest on record -- say the authors