Creutzfeldt-Jakob Disease, CJD Support Group for short statured children of the 1970's and 1980's.

Michael shortkids_1999@ozzienet.net

In Australia, from the late 50's, prepubertal and adolescent boys with a prediction of 'short stature' were treated with synthetic androgens to excelerate their growth. Originally Norethandrolone was used and then from the early 70's Oxandrolone.

No thorough multidisciplinary, long-term follow-up has ever been done with regard to this treatment. Many of the Australian Men and some Women now report a range of medical problems which they fear may be the result of their treatment with androgens.

There is however evidence about their concerns since the fact that Oxandrolone treatment was discontinued in 1990 and other Growth promotors such as Human Growth Hormone (hGH)has now ceased being manufactured from Pituiarty Glands in 1985.

We believe that the report completed by Professor Allars, her executive summaries and Dr Lawrence's speech to the House prove beyond any question that there had been significant breaches of the law as it applies to a wide variety of areas. These include the manufacture of the hormone, including the collection of glands, distribution of the hormone by various agencies, including HPAC, CSL and others as detailed in the Allars report, and non-disclosure of possible side effects.

Neither compensation nor the issue of criminal or civil liability of medical practitioners were part of my terms of reference. Consequently I made no recommendation on these issues. I make no comment now. (Submission No.92, p.4.)

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